May 24 – Update

Met with the Oncology team and made Zach’s mask for radiation treatment which should begin early next week.  Today’s CT scan shows that the tumor (currently the size of a small mandarin) may be a little smaller than originally thought, which is promising.  Zach is feeling pretty good, but seems a little more “hangry” lately (most likely as a result of the steroids).  He asked for a “Baconator” this morning of all things.  Hope is after the first week or so, the steroid dosage can be reduced.

Thanks to all those who have extended their love, prayers, and assistance over the past few days.  Meals have been wonderful, and we are so thankful for the outpouring of love from so many people.

We have received a few offers of financial assistance etc, and thank everyone so much for this.  We are still assessing financial need, but will update everyone in the near future.

Thanks again to everyone for their love and support.

Our Sweet Son Zachary

Our sweet son Zachary has been diagnosed with an inoperable brain stem tumour. We will be starting radiation in the next week or so to try and shrink the tumour. It is aggressive and will never go away… but we are hopeful that the radiation will give us more time and less suffering for our son. We were able to come home today as their isn’t much the hospital can do over the long weekend…that we couldn’t be doing for him at home. He is taking steroids to help reduce some of the swelling around his tumour and to give him so relief from the nausea and vomiting and dizziness. His head is tilted to the right and his right eye is a bit droopy from the pressure. We are already receiving an outpouring of love and support and help from family and friends, and our little family is very much still in shock. We are working on creating a Facebook blog or group to keep people updated as it is very hard and almost impossible to answer all text and phone calls at this time. Zach is happy to play with Lego today and spend time with his loving sisters. Please pray for us and especially our sweet boy Zachary. If you know Zachary…you know that he is so full of love for anyone and everybody he meets. He is selfless and gives the best hugs. Our hearts are truly broken and wish we could wake up from this horrible nightmare. Thanks to my family who have been helping us so much already.